Articles
- Development of an elective course in rare and interesting diseases. (Currents in Pharmacy Teaching and Learning 2013)
- Rare disease resources not as rare as one might think (AJHP 2013)
- The care continuum: an evolving model for care and research in rare diseases. (Pediatrics 2017)
- Addressing the challenges of persons living with a rare disease and their families: resolution. (United Nations General Assembly, 76th Session 2021-2022).
